Edie is first baby with condition for eight years

By by Alan Vincent alan.vincent@iomtoday.co.im Twitter: @iomnewspapers in Charity

A Douglas mother hopes to raise awareness of the disease cystic fibrosis after her child became the first to be born in the island with the debilitating condition for eight years.

Nadine Moffitt and partner Joe Egan found out their daughter, Edie, had the condition when she was just two-weeks old.

Cystic fibrosis is a life-shortening genetic condition that causes internal organs, especially the lungs and pancreas, to become clogged with thick sticky mucus, resulting in digestive problems, chronic lung infections and inflammation of the lungs.

It is a progressive condition with no cure which tends to get worse over time and eventually the lungs can become increasingly damaged and the condition can be fatal.

The Cystic Fibrosis Trust (IOM) helps and supports patients by purchasing medical equipment.

Nadine said: ’We were shocked. We also have a two-year-old daughter, Poppy, who is fit and healthy so we didn’t expect it. We didn’t know much about cystic fibrosis and my first question was "how can we make her better?".

’We don’t know exactly how the condition will affect Edie as every person with CF is affected differently in regards to symptoms and severity.

’She takes daily medication to help with her digestion and respiratory symptoms, and we perform physio two to three times a day to help clear her lungs.

’Many people don’t know what CF is or how it affects people. It is not a well-known disease, especially in the Isle of Man, so it is easily overlooked when it comes to awareness or fundraising.

’There are 13 people on the island fighting CF and although they may look healthy on the outside, each person is battling their own range of symptoms on a daily basis. We are trying to raise awareness and funds for the Isle of Man charity.’

This week (June 19 to 25) is National Cystic Fibrosis Week and you can donate to the Isle of Man branch at www.justgiving.com/cysticfibrosis-iom

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